Resources
Here you’ll find valuable information about CF services and links to other CF organizations.
Cystic Fibrosis Foundation www.cff.org
The Cystic Fibrosis Foundation is the leading organization in the United States devoted to cystic fibrosis, and its website provides a wealth of information.
COMPASS www.compass@cff.org 844-COMPASS (844-266-7277)
COMPASS provides personal one-on-one services for people living with cystic fibrosis and their families to help with complex challenges, i.e., insurance coverage issues, financial assistance, and legal questions related to many issues.
Cystic Fibrosis Research Institute www.cfri.org
CFRI is a non-profit organization that funds innovative research and offers education, advocacy, and psychological support programs to those affected by cystic fibrosis.
CF Roundtable www.cfroundtable.com
The CF Roundtable is a comprehensive newsletter produced by the US Adult Cystic Fibrosis Association (USACFA). The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other.
The Boomer Esiason Foundation www.esiason.org
This Foundation is committed to raising awareness about CF and funding CF research, and it provides numerous ways to get involved in the fight against CF.