Resources

Here you’ll find valuable information about CF services and links to other CF organizations.

 

Cystic Fibrosis Foundation https://www.cff.org

 “The Cystic Fibrosis Foundation is the leading organization in the United States devoted to cystic fibrosis, and its website provides a wealth of information.  The mission of the nonprofit, donor-supported organization is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.”

Cystic Fibrosis Research, Inc. (CFRI) http://www.cfri.org 

“CFRI is a nonprofit organization founded in 1975.  CFRI’s mission is to fund research, provide educational and personal support, and spread awareness of cystic fibrosis.”

Boomer Esiason Foundation https://www.esiason.org 

“This foundation is committed to raising awareness about CF and funding CF research, and it provides numerous ways to get involved in the fight against CF.”

CF Roundtable (USACFA) http://www.cfroundtable.com 

“The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it.  It also offers a forum for CF adults to communicate with each other.”

Beth Sufian is 51 and has CF.  She is an attorney who specializes is disability law and is a Director of USACFA.  You may contact her with your legal questions about CF-related issues.  1-800-622-0385, bsufian@usacfa.org

 CF Living http://www.cfliving.com

 “CF Living is a place for community, support, and information for those living with cystic fibrosis.”  

FUNDS AND PHARMACIES

Cystic Fibrosis – HealthWell Foundation   http://www.healthwellfoundation.org/fund/cystic-fibrosis/

“The Cystic Fibrosis Fund is designed to assist eligible people living with cystic fibrosis with cost-shares associated with CF-specific treatments.”

Cystic Fibrosis Services/Walgreens http://www.walgreens.com

“Cystic Fibrosis Services, Inc. was established in 1988 as a specialty pharmacy for cystic fibrosis medications, patient advocacy and reimbursement support.  Now a Walgreens Alliance Pharmacy, we are your source for treatment support, online account access, and cystic fibrosis medications–with the ability to deliver right to your door.”

Cystic Fibrosis Pharmacy http://hhcs.com/cystic-fibrosis-pharmacy

“Cystic Fibrosis Pharmacy is a full-service, comprehensive specialty pharmacy with a distinguished reputation for serving the most complex pharmacy needs of Cystic Fibrosis patients. We’ve been relied on by patients and healthcare providers throughout the U.S. for over 25 years.”

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