Here you’ll find valuable information about CF services and links to other CF organizations.
The Cystic Fibrosis Foundation is the leading organization in the United States devoted to cystic fibrosis, and its website provides a wealth of information. The mission of the nonprofit, donor-supported organization is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
CFRI is a nonprofit organization founded in 1975. CFRI’s mission is to fund research, provide educational and personal support, and spread awareness of cystic fibrosis.
This foundation is committed to raising awareness about CF and funding CF research, and it provides numerous ways to get involved in the fight against CF.
The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other.
Beth Sufian is 51 and has CF. She is an attorney who specializes is disability law and is a Director of USACFA. You may contact her with your legal questions about CF-related issues. 1-800-622-0385, firstname.lastname@example.org
CF Living is a place for community, support, and information for those living with cystic fibrosis.
Funds and Pharmacies
The Cystic Fibrosis Fund is designed to assist eligible people living with cystic fibrosis with cost-shares associated with CF-specific treatments.
The Cystic Dreams Fund seeks to support individuals and families impacted by the huge costs cystic fibrosis can generate.
These costs may include drug co-pays, medical bills and transplant-related expenses.
The Bonnell Foundation helps parents with mentoring, medical assistance and college grants. We also try when possible to resolve insurance challenges. A person with cystic fibrosis can apply via our website for a lung transplant grant.
The Assistance Fund is an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles and other health-related expenses.
Cystic Fibrosis Services, Inc. was established in 1988 as a specialty pharmacy for cystic fibrosis medications, patient advocacy and reimbursement support. Now a Walgreens Alliance Pharmacy, we are your source for treatment support, online account access, and cystic fibrosis medications–with the ability to deliver right to your door.
Cystic Fibrosis Pharmacy is a full-service, comprehensive specialty pharmacy with a distinguished reputation for serving the most complex pharmacy needs of Cystic Fibrosis patients. We’ve been relied on by patients and healthcare providers throughout the U.S. for over 25 years.